Really, really appreciating this article today:
Debunking Myths: Fibromyalgia & 'Inability to Deal with Pain'
Whether you are someone who deals with Fibro, lives with someone with Fibro, or knows someone with Fibro {ahem, so if you're reading my blog that means YOU! :)}, then you should definitely check out this article!
It's pretty short and helps give good insight into pain tolerance vs. pain threshold.
Good stuff.
Showing posts with label Fibro Links. Show all posts
Showing posts with label Fibro Links. Show all posts
Tuesday, February 22, 2011
Thursday, February 17, 2011
Leaders Against Pain Article
I really appreciated this article on the Fibro Blog and hope you do too.
Sunday, January 16, 2011
A Reality of Chronic, Invisible Illness
A cold, harsh reality of having a chronic, invisible illness is that people forget.
They forget that you feel awful every single day, no matter how you look on the outside. That it may ebb and flow, but that the pain and fatigue never goes away.
They forget that you're trying to not be a complainer, but that you truly have horrendous pain and fatigue, and are uncomfortable each and every day... whether you say anything about it or not.
They forget that you don't want to spend every waking, speaking moment of the day talking about your illness, but that it's still okay to ask how you're feeling and see if there's any way they can encourage and support you.
They forget that asking you "are you okay? you don't look so good" is just about the worst thing you could say. Especially to one who is also a hypochondriac with anxiety issues. I literally spent the rest of the day contemplating how terrible I looked and trying to hide my anxiety over it.
I also have the people who tell me encouraging compliments each week, who remind me that I look good and am doing better than I was a couple years ago. Which is truly remarkable and very kind.
Despite that the roller coaster of emotions that goes along with all of that is exhausting, I know it's just part of my life now. It's hard, but it's my new reality.
And don't get me wrong, I would never expect everyone to remember what my life is like now every second of the day. I don't want pity. I just wish people would remember sometimes. It's just hard to face the reality that I may look normal, but I don't ever feel normal.
I just read a post I learned about from the Fibro 360 Community on Facebook called The Invisibility of ME/CFS & Fibromyalgia which was a really good and helpful read. It's encouraging for those with chronic illnesses, and gives reminders to those without it of how to better understand what we go through. I highly recommend reading it!
Now like I said, I don't expect pity or sympathy... I just want to help others understand what life is like for us. It can often be very lonely, very depressing, very trying, and very frustrating... but we may not tell anyone in our lives what we're feeling every moment because we don't want to be gloomy and depressing all the time. We want to still live our lives. We want to still seek the best things life has to offer. I want to still honor God in every way I can through this and the body He has given to me.
I'm just sharing the dark, lonely road, and the harsh reality life with a chronic, invisible illness can bring. But I'm thankful for the love of Christ, and the goodness, grace, and mercy of God which is new each day. And I'm leaning fully on him to bring me through all the agonizing, stressful, draining, exhausting, confusing, depressing days. He carries me. That's all I need.
They forget that you feel awful every single day, no matter how you look on the outside. That it may ebb and flow, but that the pain and fatigue never goes away.
They forget that you're trying to not be a complainer, but that you truly have horrendous pain and fatigue, and are uncomfortable each and every day... whether you say anything about it or not.
They forget that you don't want to spend every waking, speaking moment of the day talking about your illness, but that it's still okay to ask how you're feeling and see if there's any way they can encourage and support you.
They forget that asking you "are you okay? you don't look so good" is just about the worst thing you could say. Especially to one who is also a hypochondriac with anxiety issues. I literally spent the rest of the day contemplating how terrible I looked and trying to hide my anxiety over it.
I also have the people who tell me encouraging compliments each week, who remind me that I look good and am doing better than I was a couple years ago. Which is truly remarkable and very kind.
Despite that the roller coaster of emotions that goes along with all of that is exhausting, I know it's just part of my life now. It's hard, but it's my new reality.
And don't get me wrong, I would never expect everyone to remember what my life is like now every second of the day. I don't want pity. I just wish people would remember sometimes. It's just hard to face the reality that I may look normal, but I don't ever feel normal.
I just read a post I learned about from the Fibro 360 Community on Facebook called The Invisibility of ME/CFS & Fibromyalgia which was a really good and helpful read. It's encouraging for those with chronic illnesses, and gives reminders to those without it of how to better understand what we go through. I highly recommend reading it!
Now like I said, I don't expect pity or sympathy... I just want to help others understand what life is like for us. It can often be very lonely, very depressing, very trying, and very frustrating... but we may not tell anyone in our lives what we're feeling every moment because we don't want to be gloomy and depressing all the time. We want to still live our lives. We want to still seek the best things life has to offer. I want to still honor God in every way I can through this and the body He has given to me.
I'm just sharing the dark, lonely road, and the harsh reality life with a chronic, invisible illness can bring. But I'm thankful for the love of Christ, and the goodness, grace, and mercy of God which is new each day. And I'm leaning fully on him to bring me through all the agonizing, stressful, draining, exhausting, confusing, depressing days. He carries me. That's all I need.
Tuesday, June 29, 2010
Life with Fibromyalgia Reality
I recently read a few posts that I wanted to share with you. Each of them in their own ways sheds some further light on the reality of life with Fibromyalgia, and I just feel like they all say it so much better than I do. Please take some time to read them, give them some love, and let them know you were there.
why me?
You don't have to like it to accept it
Looks
The blessing of pain
A better way to rate your pain *warning: crude language*
The truth hurts
Even a weed can be a perfect flower
Does anyone really listen anymore?
Day off *you know it's bad when Vicodin can't help!*
why me?
You don't have to like it to accept it
Looks
The blessing of pain
A better way to rate your pain *warning: crude language*
The truth hurts
Even a weed can be a perfect flower
Does anyone really listen anymore?
Day off *you know it's bad when Vicodin can't help!*
Subscribe to:
Posts (Atom)