Thursday, January 21, 2010

Overwhelmed with Fibromyalgia Information

I've had two things that have happened recently that have me overwhelmed, researching, and praying. I haven't decided yet what to do and haven't followed through on these things, so take it for what it is... just ideas for now. I don't necessarily endorse either thing and will keep you posted:

1. I got an email from a Doctor Steve. Read about what he's recommending to me here. It was a very kind, thoughtful, no-pressure, understanding email. He is a godly man who sounds trustworthy. But, granted, it's over the Internet, so I'm doing some research, thinking and praying about whether or not to take a step and leap into this whole Banjo thing. Have any of you other chronic illness peeps heard about it? What do you think?

2. I saw the other day that someone called Ben's Friends started following me on Twitter. Going to their home Twitter page lead me to their website. All I can say is WOW. I know there are a lot of sites out there to help connect people with chronic illnesses, but most of them are really overwhelming for me. If it's not clean and simple, I pull away pretty quickly. I have too much going on and my brain is often too much on overload that looking through a complicated website is often just too much. So this one really hit me spot on. I haven't done tons of digging yet, but I'm looking forward to learning more about this organization and how it can help me. So far, I've already learned a lot just glancing through some forum topics. Have you ever seen this site before? If not, be sure to check it out at Let me know what you think!


My doctor and I decided to see if I could handle reducing my Amitriptyline. I am only on 25 mg of it, but I wasn't convinced it was really doing much. My general goal lately has been to reduce my reliance on prescription drugs and work toward handling my symptoms more holistically. Please note that I am in no way doing this because I have problems with prescription drugs or that I think natural medicine is best for everyone. I just think this is best for me for now. I think we all have to make the best decisions we can with what's in front of us at the time, with all the different scenarios going on in our lives. For me right now, a big issue is weight gain/weight loss. I'm trying to do what I can to lose weight, and know that my prescription drugs have helped to dramatically increase my weight over the years.

Anyway, apparently even lessening it by 5 mg has amazing effects! I feel like I haven't really slept this week since lowering the dosage. The pain is harder to gauge since getting back into the swing of my regular workouts. I can't tell if it's bad because of pushing through the workout pain, or if it's bad because of the medicine lowering. Hopefully in the next 1-2 weeks I will have a better sense of things. For now, I'm just trying to keep living to the best of my ability, and soak in all the moments of energy that I can. I'm still just amazed at the level of energy I get from the regular workouts. I can definitely see a difference when I miss a workout. It's amazing. It really works for me. I'm so thankful!!

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